Call to resolve dispute stopping 35 children receiving CF treatment
HSE and pharma firm Vertex urged by Cystic Fibrosis Ireland to resolve pricing dispute
Department defends €90m deal for antiviral drugs to treat Covid-19
Cost of deal is three times annual budget usually in place for new drugs in Republic
HSE approves cannabis-based medicine for epilepsy patients
Apporval means HSE will reimburse patients for cost of cannabis-based treatment for the first time
Let’s talk about acceptable Covid death rates before restrictions kick in
Debate about economic restrictions versus Covid suffering has been shirked in Ireland
HSE to provide treatment for fatal disease amyloidosis
Up to 1% of Co Donegal population has been estimated to have the hereditary condition
Medicines regulators urged to approve drug to treat head and neck cancer
Patient’s insurer refuses to cover €40,000 cost of treatment as drug has not been approved for particular cancer
‘How can my own country put a price on the lives of rare disease sufferers?’
When a cure is found for Friedreich’s ataxia, will I face the long campaign to access treatment funding endured by other people with rare diseases?
PKU drug to be made available to Irish patients at third time of asking
HSE has agreed to reimburse Kuvan for up to 20pc of patients with rare metabolic disorder
HSE to consider funding Spinraza as NHS approves muscle-wasting therapy
Biogen, maker of drug to treat spinal muscular atrophy, drops price of medicine
Pricing of medicines needs to be reformed, says IPHA president
Aidan Lyncht HSE should not be expected to pay for drugs that are not innovative
New cancer drugs could cost State €500m
Number of indications covered by VHI initiative now 13, not three as had been thought
Rivals have no plans to follow VHI’s decision on cancer drugs
Move raises questions of equity between public and private patients
Access to cancer drugs for private patients ‘incredibly unfair’
Consultant oncologist says inequity between public and private healthcare ‘very troubling’
Drug costs threaten to bankrupt healthcare, says lobby group
Access to Medicines Ireland seeks change in R&D approach of pharmaceutical companies
Ireland compares poorly with Europe for access to medicines - report
Study examines access to 121 drugs approved since 2015 by EU regulator
Ten new medicines waited more than two years for HSE approval
Medicines generally blocked on basis of price as Ipha says delay ‘unacceptably long’
Shouting the loudest often proves the catalyst in a broken drug-approvals process
Spinraza is the latest in a series of controversial drugs that have put Ireland’s unique approval system in the spotlight
No winner in drug-price balancing act
Cantillon: Patients have one shot at treatment but what if it is deemed too expensive?
Drug companies angry at allegation of ‘predatory pricing’
Row between industry and body that advises the HSE over access to market for new medicines
Limiting cancer drug access to 221 women ‘discrimination’
Labour TD criticises selective provision of drug to women caught up in CervicalCheck controversy
New patient education course shines light on clinical drugs trials
‘It’s also important for researchers to hear what patients want from new drugs’
Families plead with health minister for access to drug
‘You have to ask why other countries have been happy with the clinical evidence but not here’ - mother of girl (10)
Drug firms seeking ‘over the top’ prices, committee hears
HSE representatives defend process for deciding which drugs to reimburse
Bill will require doctors to declare gifts from pharma firms
Healthcare companies gave €30 million to hospitals, medical staff in 2016, says Minister
Drug for PKU to be withheld by HSE on cost grounds
Kuvan is the only drug treatment for rare metabolic ‘heel prick test’ disorder
Children with muscular dystrophy will not get new drug
HSE decides against approving Translarna for reimbursement under drugs schemes
HSE runs out of money needed to provide new medicines to patients
Department says it is considering three medicines for approval
Breast cancer patients denied access to EU-approved drug
Manufacturer accuses HSE of deviating from approvals processes by blocking Perjeta
Increase in €2.50 prescription levy has cost State millions
More patients are switching to Long-Term Illness scheme to avoid paying charge
Price row set to end access to lung disease drug
Over 20 emphysema sufferers to see use of ‘life changing’ Respreeza finish in two weeks
Emphysema patients can stay on ‘life-changing’ drug
Over 20 sufferers are given Respreeza reprieve while talks continue on approving the treatment
Hope for child after getting access to ‘miracle drug’ in Dublin
Nellie Lannen (22 months) has condition causing muscle wastage, impaired breathing
Orkambi-maker among sponsors of CF Ireland’s conference
US pharma Vertex in talks with HSE to reduce high price of cystic fibrosis drug
Update on Cystic Fibrosis drug Orkambi expected in new year
Negotiations with manufacturer ongoing as Harris accuses Vertex of trying to ‘extort’ taxpayers
One of the most common lung disorders in Ireland you’ve never heard of
Alpha-1 deficiency is a hereditary condition that has an “unusually high” prevalence here
Orkambi protests highlight need for clear policy on expensive drugs
Health spending in one area cannot come at expense of another
HSE seems set to reject ‘ground-breaking’ cystic fibrosis drug
Orkambi had been ‘considered unjustifiably expensive and not sufficiently cost effective’
HSE is negotiating price for cystic fibrosis drug, Kenny says
Taoiseach says meetings are under way with pharmaceutical firm over cost of Orkambi
Child patients will not receive cystic fibrosis drug due to cost
Study finds the use of the ‘wonder drug’ would cost €21m over a five-year period
Unfunded cancer drug nivolumab ‘can extend life’
A third of patients with advanced renal cell carcinoma were alive five years after treatment
Cystic fibrosis campaigners push for Orkambi funding
#YesOrkambi drive launched in support of approval for €160,000 per patient medicine
A doctor writes: Cost of high-tech drugs a bitter pill to swallow
Melanoma patients told State to cover Pembro, while CF drug Orkambi ‘too expensive’
Cystic fibrosis patients dismayed as Orkambi rejected
CF campaigner Orla Tinsley says decision disappointing as trials showed drug works
HSE set to make new drug available to melanoma sufferers
Pembrolizumab to be included in drugs scheme three months after economic approval
Cystic Fibrosis drug Orkambi rejected as not cost effective
Price talks urged between Government and maker on €160,000 per patient medicine
New cancer drug to be given to patients free for 30 days
Bristol-Myers Squibb allows compassionate access to nivolumab after appeal by Harris
Life and death decisions on cancer drugs
Politicians are the least qualified to make call on treatment options
Living with cancer: ‘Combined surgery and pembro kept me alive’
Numerous controversies over huge costs of drugs have erupted. What price do we put on life?
Meet the children who can't eat a plate of chips
Living with PKU: Families call for genetic disorder drug that is available in UK as highly restricted diet to hard to follow
Cystic fibrosis drug may be made available to patients
Orkambi has been described as a ‘game changer’ by health campaigners
FF leader criticises lack of funding for drug treatment
Micheál Martin says cystic fibrosis patients will need help to pay for new drug, Orkambi
Cystic Fibrosis sufferer pleads for access to ‘groundbreaking’ drug
HSE says it cannot afford Orkambi which will reportedly cost €160,000 per patient per year
HSE considering new incentive scheme for GPs
Initiative aimed at cost-efficient prescribing that could potentially save €15m on drugs bill
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